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Product Description
On December 8, 1995, Jean-Dominique Bauby's life was forever altered when a part of his body he'd never heard of--his brain stem--was rendered inactive. The Diving Bell and the Butterfly, his exquisitely painful memoir, is neither a triumphant account of recovery nor a journey into the abyss of self-pity. Instead, it is a tender testament to the power of language and love. At 43, Bauby was defined by success, wit and charisma. But in the course of a few bewildering minutes, the editor-in-chief of French Elle became a victim of the rare locked-in syndrome. The only way he could express his frustration, however, was by blinking his left eye. The rest of his body could no longer respond. Bauby was determined to escape the paralysis of his diving bell and free the butterflies of his imagination. And with the help of ESA, "a hit parade in which each letter is placed according to the frequency of its use in the French language," Bauby did so. Visitors, and eventually his editor, would read each letter aloud and he would blink at the right one. Slowly--painstakingly-- words, sentences, paragraphs and even this graceful book emerged. Bauby relays the horrors and small graces of his struggle, which range from awaking one day to discover his right eye being sewn shut to realising the significance of Father's Day, a holiday previously absent from his family's "emotional calendar": "Today we spent the whole of the symbolic day together, affirming that even a rough sketch, a shadow, a tiny fragment of a dad is still a dad." The author makes it clear that being locked in doesn't kick open the doors of perception, but The Diving Bell and the Butterfly is nonetheless a celebration of life. Jean Dominique-Bauby died of a heart attack on March 9, 1997, two days after his book was published in France.
Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolesence, 28 Aug 2008
I first came across this book when I was at secondary school, and since leaving back in 2005, I have been searching for this particular title. I must say how highly impressed I was with this book and to read about the experiences of someone who has Aspergers Syndrome as it was a pleasure to read. This book is a real must for anyone who has Aspergers Syndrome or anytime of autism or for those who know nothing about this condition.
Thank You Luke, 11 May 2008
Im 15 years old and I was diagnosed with Aspergers Syndrome (AS) last year and reading this book has changed my life. Before I was told I had AS, I was always picked on for being different and sometimes I was so depressed and felt so alone, I wouldn't get out of bed for days. When I was diagnosed, I was told to read this book by a family friend and in doing so, my life changed. Luke Jackson, the author of the book writes about the everyday struggles that AS sufferers have to deal with, and after I finished the book, i thought 'Im not alone, there are other people who know what im going through'. Now I have turned my life around and I am looking foward to my future. Luke Jackson, i just want to say 'Thank You' for making me realise that im not a freak.
Such a good read, 29 Apr 2008
This is a fantastic book regardless of why you are reading it. I have worked in the past, and still do, with children who have AS and this was my main reason for reading it. It has such a different feel from other books as he is only 13 and this comes across so much in the book. I have read other books by teenagers and young adults with the same condition and they are equally just as good. I liked the fact that it all seemed to be Luke coming through rather than an adult's influence (apart from the obvious guidance and tidying up a book would need before it gets published).
The topics he covers are very relevant to those who have AS and those who come in contact with AS. Aspects such as bullying, fixations, sleeping, sports, friendships, dating, difficulties at school and language are dealt with brilliantly. However the most pertinent chapter for me was the one about when to tell a child they have AS.
Luke used his immediate sources - mother and siblings to help him with some of the content so that others with the condition can understand how people see them and this was such a good part of the book. I loved the idioms he uses and laughed out loud in many places. Not only will it give people an insight there is also practical information in there with websites, books and dietary information (also discussed in his other book). A fabulous read that is both inspirational and refreshing.
Read this book now|, 18 Sep 2007
I bought this book more out of curiousity rather than a need to know about AS/ Autism; I know/'work' with people on the autistic spectrum and this book was fantastic.
I'd recommend it to anyone whether autistic, family or friends of someone who is autistic or just someone who is interested.
Very well done to Luke Jackson , 09 Jan 2007
As an individual with Asperger's syndrome, I thought that it portrayed Asperger's syndrome perfectly, I could relate to almost all of it. The humour worked really well, because AS is normally portrayed really negatively. So, in summary, it made me laugh, cry, and realise that having AS isn't such a bad thing after all.
So, if Luke Jackson ever reads this, then very well done! I thoroughly enjoyed every page of it!!!
Jennifer Jackson
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A Friend Like Henry
Usually dispatched within 1-2 business days *Best price found from Amazon Marketplace seller
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*Amazon: £2.91
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolesence, 28 Aug 2008
I first came across this book when I was at secondary school, and since leaving back in 2005, I have been searching for this particular title. I must say how highly impressed I was with this book and to read about the experiences of someone who has Aspergers Syndrome as it was a pleasure to read. This book is a real must for anyone who has Aspergers Syndrome or anytime of autism or for those who know nothing about this condition.
Thank You Luke, 11 May 2008
Im 15 years old and I was diagnosed with Aspergers Syndrome (AS) last year and reading this book has changed my life. Before I was told I had AS, I was always picked on for being different and sometimes I was so depressed and felt so alone, I wouldn't get out of bed for days. When I was diagnosed, I was told to read this book by a family friend and in doing so, my life changed. Luke Jackson, the author of the book writes about the everyday struggles that AS sufferers have to deal with, and after I finished the book, i thought 'Im not alone, there are other people who know what im going through'. Now I have turned my life around and I am looking foward to my future. Luke Jackson, i just want to say 'Thank You' for making me realise that im not a freak.
Such a good read, 29 Apr 2008
This is a fantastic book regardless of why you are reading it. I have worked in the past, and still do, with children who have AS and this was my main reason for reading it. It has such a different feel from other books as he is only 13 and this comes across so much in the book. I have read other books by teenagers and young adults with the same condition and they are equally just as good. I liked the fact that it all seemed to be Luke coming through rather than an adult's influence (apart from the obvious guidance and tidying up a book would need before it gets published).
The topics he covers are very relevant to those who have AS and those who come in contact with AS. Aspects such as bullying, fixations, sleeping, sports, friendships, dating, difficulties at school and language are dealt with brilliantly. However the most pertinent chapter for me was the one about when to tell a child they have AS.
Luke used his immediate sources - mother and siblings to help him with some of the content so that others with the condition can understand how people see them and this was such a good part of the book. I loved the idioms he uses and laughed out loud in many places. Not only will it give people an insight there is also practical information in there with websites, books and dietary information (also discussed in his other book). A fabulous read that is both inspirational and refreshing.
Read this book now|, 18 Sep 2007
I bought this book more out of curiousity rather than a need to know about AS/ Autism; I know/'work' with people on the autistic spectrum and this book was fantastic.
I'd recommend it to anyone whether autistic, family or friends of someone who is autistic or just someone who is interested.
Very well done to Luke Jackson , 09 Jan 2007
As an individual with Asperger's syndrome, I thought that it portrayed Asperger's syndrome perfectly, I could relate to almost all of it. The humour worked really well, because AS is normally portrayed really negatively. So, in summary, it made me laugh, cry, and realise that having AS isn't such a bad thing after all.
So, if Luke Jackson ever reads this, then very well done! I thoroughly enjoyed every page of it!!!
Jennifer Jackson
Honest, blunt, rewarding, 31 Oct 2008
a friend like henry,written by Nuala Gardner and published by Sourcebooks is a parents' book about autism...with all the fluffy bits removed. Honest, blunt, significant, rewarding. A well written, meaningful and very readable book.
a friend like henry is a book that tells the reader how frustrating, enlightening and magical living with autism can be, both for the person on the spectrum and those that live in the world parallel to ours.
I am happy to say that at no time in this book is it ever implied that Dale should be 'cured' of his autism, it is obvious throughout the book that the search is for coping mechanisms and behavioral modification.
One of the things I enjoyed most was that Nuala does not claim that pet therapy is the only solution to the above dilemma but she does openly and honestly share one way of using an autistic child's obsession to their family's best advantage.
One of the things I disliked the most about this book (besides the use of all lower case for the title and author name), was the way it rewired all my emotions and made me cry every few pages. I found that I had to pace myself through this book by reading it in between several others in order to give my emotions a break. I nearly couldn't continue on reading it at the end but I am not going to tell you why, as it will 'ruin' the ending for you. However, I am happy that I did carry on.
After reading this book I am still convinced that our N3S is still the child most likely to be savaged by a dog but I picked up a few tips encouraging on behavioral modification which we will apply through other mediums.
The section where Dale 'speaks' at the end of the book along with Nuala's afterword are nice twists and are the perfect ending to what I feel is a triumph of literary honesty. This is a very special book.
I speak as both an adult Aspie and a mother of an Aspie child when I say that this book will break your heart into several pieces and then show you interesting new ways to put it back together again.
It doesn't get better than this!, 06 Aug 2008
I couldn't put this book down. It made me laugh out loud and cry to the point of sobbing. I loved the tenacity, love and care of the Mother and I adored the dog.
A book that must give hope to parents of children with autism as the progress of her son is impressive. My best book of the year - even my husband read it.
I want a sequel!!!!!
A book All parents should read, 16 Apr 2008
As the parent of a Autistic Child the story was nothing new to me
but what was the comforting thing is the knowledge that someone else went through the same as me yes i could relate to most of the things in the book and the same feelings of dispair and the wish that my child could be "normal" this is a book that all parents should read as i think that the more understanding there is of the condition can only be for the good and help to dispel fears in relation to MMR and other factors
incredible, 03 Mar 2008
an amazing book about an amazing journey this family made. such an honest account of many difficult experiences. read it in one day. made me smile, made me laugh, made me cry. read it!!!
A special tale, 12 Nov 2007
This is the book to read if you think you have had a tough day! What Nuala and her husband went through with their two children is shocking and a real testament to them that they stayed together and kept their family strong. None of it would have been possible without Henry - a dog who you would think had been invented by Disney but really is a wondermutt. A moving and uplifting read
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolesence, 28 Aug 2008
I first came across this book when I was at secondary school, and since leaving back in 2005, I have been searching for this particular title. I must say how highly impressed I was with this book and to read about the experiences of someone who has Aspergers Syndrome as it was a pleasure to read. This book is a real must for anyone who has Aspergers Syndrome or anytime of autism or for those who know nothing about this condition.
Thank You Luke, 11 May 2008
Im 15 years old and I was diagnosed with Aspergers Syndrome (AS) last year and reading this book has changed my life. Before I was told I had AS, I was always picked on for being different and sometimes I was so depressed and felt so alone, I wouldn't get out of bed for days. When I was diagnosed, I was told to read this book by a family friend and in doing so, my life changed. Luke Jackson, the author of the book writes about the everyday struggles that AS sufferers have to deal with, and after I finished the book, i thought 'Im not alone, there are other people who know what im going through'. Now I have turned my life around and I am looking foward to my future. Luke Jackson, i just want to say 'Thank You' for making me realise that im not a freak.
Such a good read, 29 Apr 2008
This is a fantastic book regardless of why you are reading it. I have worked in the past, and still do, with children who have AS and this was my main reason for reading it. It has such a different feel from other books as he is only 13 and this comes across so much in the book. I have read other books by teenagers and young adults with the same condition and they are equally just as good. I liked the fact that it all seemed to be Luke coming through rather than an adult's influence (apart from the obvious guidance and tidying up a book would need before it gets published).
The topics he covers are very relevant to those who have AS and those who come in contact with AS. Aspects such as bullying, fixations, sleeping, sports, friendships, dating, difficulties at school and language are dealt with brilliantly. However the most pertinent chapter for me was the one about when to tell a child they have AS.
Luke used his immediate sources - mother and siblings to help him with some of the content so that others with the condition can understand how people see them and this was such a good part of the book. I loved the idioms he uses and laughed out loud in many places. Not only will it give people an insight there is also practical information in there with websites, books and dietary information (also discussed in his other book). A fabulous read that is both inspirational and refreshing.
Read this book now|, 18 Sep 2007
I bought this book more out of curiousity rather than a need to know about AS/ Autism; I know/'work' with people on the autistic spectrum and this book was fantastic.
I'd recommend it to anyone whether autistic, family or friends of someone who is autistic or just someone who is interested.
Very well done to Luke Jackson , 09 Jan 2007
As an individual with Asperger's syndrome, I thought that it portrayed Asperger's syndrome perfectly, I could relate to almost all of it. The humour worked really well, because AS is normally portrayed really negatively. So, in summary, it made me laugh, cry, and realise that having AS isn't such a bad thing after all.
So, if Luke Jackson ever reads this, then very well done! I thoroughly enjoyed every page of it!!!
Jennifer Jackson
Honest, blunt, rewarding, 31 Oct 2008
a friend like henry,written by Nuala Gardner and published by Sourcebooks is a parents' book about autism...with all the fluffy bits removed. Honest, blunt, significant, rewarding. A well written, meaningful and very readable book.
a friend like henry is a book that tells the reader how frustrating, enlightening and magical living with autism can be, both for the person on the spectrum and those that live in the world parallel to ours.
I am happy to say that at no time in this book is it ever implied that Dale should be 'cured' of his autism, it is obvious throughout the book that the search is for coping mechanisms and behavioral modification.
One of the things I enjoyed most was that Nuala does not claim that pet therapy is the only solution to the above dilemma but she does openly and honestly share one way of using an autistic child's obsession to their family's best advantage.
One of the things I disliked the most about this book (besides the use of all lower case for the title and author name), was the way it rewired all my emotions and made me cry every few pages. I found that I had to pace myself through this book by reading it in between several others in order to give my emotions a break. I nearly couldn't continue on reading it at the end but I am not going to tell you why, as it will 'ruin' the ending for you. However, I am happy that I did carry on.
After reading this book I am still convinced that our N3S is still the child most likely to be savaged by a dog but I picked up a few tips encouraging on behavioral modification which we will apply through other mediums.
The section where Dale 'speaks' at the end of the book along with Nuala's afterword are nice twists and are the perfect ending to what I feel is a triumph of literary honesty. This is a very special book.
I speak as both an adult Aspie and a mother of an Aspie child when I say that this book will break your heart into several pieces and then show you interesting new ways to put it back together again.
It doesn't get better than this!, 06 Aug 2008
I couldn't put this book down. It made me laugh out loud and cry to the point of sobbing. I loved the tenacity, love and care of the Mother and I adored the dog.
A book that must give hope to parents of children with autism as the progress of her son is impressive. My best book of the year - even my husband read it.
I want a sequel!!!!!
A book All parents should read, 16 Apr 2008
As the parent of a Autistic Child the story was nothing new to me
but what was the comforting thing is the knowledge that someone else went through the same as me yes i could relate to most of the things in the book and the same feelings of dispair and the wish that my child could be "normal" this is a book that all parents should read as i think that the more understanding there is of the condition can only be for the good and help to dispel fears in relation to MMR and other factors
incredible, 03 Mar 2008
an amazing book about an amazing journey this family made. such an honest account of many difficult experiences. read it in one day. made me smile, made me laugh, made me cry. read it!!!
A special tale, 12 Nov 2007
This is the book to read if you think you have had a tough day! What Nuala and her husband went through with their two children is shocking and a real testament to them that they stayed together and kept their family strong. None of it would have been possible without Henry - a dog who you would think had been invented by Disney but really is a wondermutt. A moving and uplifting read
Real Life Autism, 16 Jun 2008
A very moving and interesting account of living with autism. I liked the way the vulnerability and the fragility of David's life was shown with such love and poignancy. Often (unintentionally) autistic children are protrayed as frightening destructive creatures because they don't understand the rules of life. This book showed us, as far as is possible, how the world looks from the point of view of the child.
Brilliant!, 30 Mar 2008
I read this book in one day (okay I was on a train to London and back!) It is one of the funniest, most moving and emotional books I have ever read. It is not inviting you to feel sorry for either the boy in the book or the parents but a portrayal of how life is for them as a family, including the older son. It was funny enough to make me laugh out loud, illiciting some strange looks from the other passengers in the compartment, and also made me swallow once or twice at particularly emotive descriptions. I cannot recommend it highly enough.
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolesence, 28 Aug 2008
I first came across this book when I was at secondary school, and since leaving back in 2005, I have been searching for this particular title. I must say how highly impressed I was with this book and to read about the experiences of someone who has Aspergers Syndrome as it was a pleasure to read. This book is a real must for anyone who has Aspergers Syndrome or anytime of autism or for those who know nothing about this condition.
Thank You Luke, 11 May 2008
Im 15 years old and I was diagnosed with Aspergers Syndrome (AS) last year and reading this book has changed my life. Before I was told I had AS, I was always picked on for being different and sometimes I was so depressed and felt so alone, I wouldn't get out of bed for days. When I was diagnosed, I was told to read this book by a family friend and in doing so, my life changed. Luke Jackson, the author of the book writes about the everyday struggles that AS sufferers have to deal with, and after I finished the book, i thought 'Im not alone, there are other people who know what im going through'. Now I have turned my life around and I am looking foward to my future. Luke Jackson, i just want to say 'Thank You' for making me realise that im not a freak.
Such a good read, 29 Apr 2008
This is a fantastic book regardless of why you are reading it. I have worked in the past, and still do, with children who have AS and this was my main reason for reading it. It has such a different feel from other books as he is only 13 and this comes across so much in the book. I have read other books by teenagers and young adults with the same condition and they are equally just as good. I liked the fact that it all seemed to be Luke coming through rather than an adult's influence (apart from the obvious guidance and tidying up a book would need before it gets published).
The topics he covers are very relevant to those who have AS and those who come in contact with AS. Aspects such as bullying, fixations, sleeping, sports, friendships, dating, difficulties at school and language are dealt with brilliantly. However the most pertinent chapter for me was the one about when to tell a child they have AS.
Luke used his immediate sources - mother and siblings to help him with some of the content so that others with the condition can understand how people see them and this was such a good part of the book. I loved the idioms he uses and laughed out loud in many places. Not only will it give people an insight there is also practical information in there with websites, books and dietary information (also discussed in his other book). A fabulous read that is both inspirational and refreshing.
Read this book now|, 18 Sep 2007
I bought this book more out of curiousity rather than a need to know about AS/ Autism; I know/'work' with people on the autistic spectrum and this book was fantastic.
I'd recommend it to anyone whether autistic, family or friends of someone who is autistic or just someone who is interested.
Very well done to Luke Jackson , 09 Jan 2007
As an individual with Asperger's syndrome, I thought that it portrayed Asperger's syndrome perfectly, I could relate to almost all of it. The humour worked really well, because AS is normally portrayed really negatively. So, in summary, it made me laugh, cry, and realise that having AS isn't such a bad thing after all.
So, if Luke Jackson ever reads this, then very well done! I thoroughly enjoyed every page of it!!!
Jennifer Jackson
Honest, blunt, rewarding, 31 Oct 2008
a friend like henry,written by Nuala Gardner and published by Sourcebooks is a parents' book about autism...with all the fluffy bits removed. Honest, blunt, significant, rewarding. A well written, meaningful and very readable book.
a friend like henry is a book that tells the reader how frustrating, enlightening and magical living with autism can be, both for the person on the spectrum and those that live in the world parallel to ours.
I am happy to say that at no time in this book is it ever implied that Dale should be 'cured' of his autism, it is obvious throughout the book that the search is for coping mechanisms and behavioral modification.
One of the things I enjoyed most was that Nuala does not claim that pet therapy is the only solution to the above dilemma but she does openly and honestly share one way of using an autistic child's obsession to their family's best advantage.
One of the things I disliked the most about this book (besides the use of all lower case for the title and author name), was the way it rewired all my emotions and made me cry every few pages. I found that I had to pace myself through this book by reading it in between several others in order to give my emotions a break. I nearly couldn't continue on reading it at the end but I am not going to tell you why, as it will 'ruin' the ending for you. However, I am happy that I did carry on.
After reading this book I am still convinced that our N3S is still the child most likely to be savaged by a dog but I picked up a few tips encouraging on behavioral modification which we will apply through other mediums.
The section where Dale 'speaks' at the end of the book along with Nuala's afterword are nice twists and are the perfect ending to what I feel is a triumph of literary honesty. This is a very special book.
I speak as both an adult Aspie and a mother of an Aspie child when I say that this book will break your heart into several pieces and then show you interesting new ways to put it back together again.
It doesn't get better than this!, 06 Aug 2008
I couldn't put this book down. It made me laugh out loud and cry to the point of sobbing. I loved the tenacity, love and care of the Mother and I adored the dog.
A book that must give hope to parents of children with autism as the progress of her son is impressive. My best book of the year - even my husband read it.
I want a sequel!!!!!
A book All parents should read, 16 Apr 2008
As the parent of a Autistic Child the story was nothing new to me
but what was the comforting thing is the knowledge that someone else went through the same as me yes i could relate to most of the things in the book and the same feelings of dispair and the wish that my child could be "normal" this is a book that all parents should read as i think that the more understanding there is of the condition can only be for the good and help to dispel fears in relation to MMR and other factors
incredible, 03 Mar 2008
an amazing book about an amazing journey this family made. such an honest account of many difficult experiences. read it in one day. made me smile, made me laugh, made me cry. read it!!!
A special tale, 12 Nov 2007
This is the book to read if you think you have had a tough day! What Nuala and her husband went through with their two children is shocking and a real testament to them that they stayed together and kept their family strong. None of it would have been possible without Henry - a dog who you would think had been invented by Disney but really is a wondermutt. A moving and uplifting read
Real Life Autism, 16 Jun 2008
A very moving and interesting account of living with autism. I liked the way the vulnerability and the fragility of David's life was shown with such love and poignancy. Often (unintentionally) autistic children are protrayed as frightening destructive creatures because they don't understand the rules of life. This book showed us, as far as is possible, how the world looks from the point of view of the child.
Brilliant!, 30 Mar 2008
I read this book in one day (okay I was on a train to London and back!) It is one of the funniest, most moving and emotional books I have ever read. It is not inviting you to feel sorry for either the boy in the book or the parents but a portrayal of how life is for them as a family, including the older son. It was funny enough to make me laugh out loud, illiciting some strange looks from the other passengers in the compartment, and also made me swallow once or twice at particularly emotive descriptions. I cannot recommend it highly enough.
Wonderful insight into the Asperger's experience, 21 Oct 2008
As a mom of a teenage son with Aspergers I found this refreshing. So many books on the subject deal with those who have struggled in life or had limited success. Daniel is an example of a child who was encouraged to take on the good bits of 'normalcy' while his uniqueness was protected and the result is a well-rounded, successful and happy young man whose Aspergers is an enhancement rather than a limitation. He reminded me of my son in many ways and his insight into his own mind and how it differs, the experiences packed in at a young age, all very interesting. His writing is very true, I suppose for those who don't know anyone with Aspergers it might lack the rhythm and dance of usual writing but it is very much like having a conversation with an Aspie, the emotion is toned down, the information is turned up. Brilliant read and you root for Daniel at the end. I look forward to a sequel.
I loved this book, 06 Aug 2008
I loved this book, it was easy to read and you really got to learn how it felt to be a savant. He's a really likeable chap and I engaged with him throughout the book. Highly recommended.
Interesting, but but too much of this book is like reading a telephone directory.., 18 May 2008
The basic premise of this book is that we should admire Daniel Temmet's journey from shy, lonely autistic child to successful, independent adult. I refused to feel sorry for him simply because he was born into (what became) a large family living on a council estate - many people share the same start in life and survive without the special abilities that Daniel possesses. Equally my pity for him at being shunned by other kids has its limits - firstly he was much happier to be on his own, devising his own amusements; plus what can you do with someone who's main idea of a good time is stacking coins or reading the telephone directory?!
Apologies to be so blunt, or if I appear cruel, but too much of this book is like reading a telephone directory - minute details about seemingly trivial things. OK, I get the point - this is now Daniel's mind works, but that does not make it interesting to read!
What is fascinating is Daniel's talent for mathematical calculations, learning languages and feats of memory. Do we all possess such untapped talents? Unfortunately we don't get too far in understanding just what is different in Daniel's brain or how we could learn from him....
Yes, it is remarkable is not how far Daniel has come in his life, and at the same time how little he has achieved given his astounding abilities - it only shows how vital skills in social interaction are. And why are we admonished for 'bad-behaviour' at school but rarely taught what 'good-behaviour' is?
Of course this is a good reminder that we all sit somewhere on the autistic spectrum (just who is at the other end - is it people like Paris Hilton who revel in social situations but are not so hot on mathematics?).
For a good read (covering much the same ground) try "A Curious Incident of the Dog in the Night."
Essential to understand what we neglect in ourselves, 04 Jan 2008
A fascinating book on an essential subject. Autism and the integration of autistic savants. The book is written by an autistic savant himself and that's its main interest. It might have been proof-read by some editor but it remains the direct testimony of an autistic savant about his whole experience. He righteously insists on his difference and his right for his difference to be recognized and welcomed in society. He explains and exemplifies the cases when it was not true, either because the social group did not make the effort to accept his difference, but also because his autism made him feel insecure, in many situations, and then he was blocked in his inner world and unable to communicate. What saved him was first of all his mathematical ability with numbers and basic operations that produced miracles when associated to his phenomenal memory. Then he could score a world record with PI and beat a Las Vegas casino in a Black Jack game. But that is not what is essential. It is that he was not discriminated against by the institution of his country, England. He was able to follow a normal school career and he could have gone to university, but he chose differently. Then he was accepted on a volunteer program to go and teach English in Lithuania. Then when back as a volunteer in his neighborhood to help young children in their school tasks. And it is like that he discovered the two other capabilities that will make a difference in his professional life: his abilities to teach foreign languages and to learn a foreign language in a few weeks of complete immersion. He knew he had a tooth for foreign languages since he had learned French and German at school, but Lithuania brought him in contact with learners and with a new language he had to learn all by himself. He thus devised a method that was to become his bread-earning activity: teaching languages via the Internet with the site http://www.optimnem.co.uk/, certified by the British authorities overlooking English language "schools". But another element was necessary for him to be able to jump onto this new adventure. He recognized and accepted his gayness in Lithuania and then fell in love when back in England. His parents were supportive in that important change in his life. He was then able to start living with someone on a totally trustful and intimate basis. This partner is extremely supportive, all the more since he is a computer technician working from home via the Internet. His world record on PI led him to be discovered by all sorts of scientists who are trying to understand how the minds of savants work and that led him to world wide fame thanks to TV. Did he have a lot of chance, or even luck? No, he benefitted from positive conditions that are far from being offered to all autistic children, especially when their autism is more stringent. Too often they are kept away from real life and locked up in institutions. Daniel's meeting Kim Peek, the model of Rain Man, the autistic character performed by Dustin Hoffman in the eponymous film, helped him understand how he benefitted from a tremendous change and a tremendously positive environment. In Kim Peek's days autistic people were institutionalized and lobotomized if necessary. We are speaking of the United States and of a recent period. He was only born in 1951, hence raised under Eisenhower and Kennedy, some ten years after the revelation that the Nazis exterminated all psychologically disabled people they could seize in Europe. That's were I want to make a remark that is going to be quite surprising to some. I do not intend to negate the difference of autistic men and women. But I do want to point out that some of their abilities exist in everyone and are just not trained and developed. We have been in the process of discovering that all children, all people are visually dominant and that they all use synesthesia now and then. We just don't recognize it and we often discourage young children to use the improper words to speak of any subject. Not four letter words but all these creative metaphors children like so much naturally, the way Shakespeare spoke voluntarily. We have to reconsider our education of children to encourage their synesthesia and their creative use of language and some abilities that are not in any way encouraged. For one example Daniel insists how letters have a personal individual phonic identity, which goes against the global method to teach how to read, even if the eye is going to capture patterns when reading, but the phonic identity was experienced by a child a long time before learning how to write and read, hence these colorations of each individual letter are already completed when he discovers his first pen and reading book. Daniel Tanner insists too on the fact that a language is not only words, far from it. it is also syntactic patterns and the learner has to build some intuitive experience of the syntactic structures of a language. The main signifying element of a language is thus the syntactic patterns that arrange the words and not the words alone. You can know a whole dictionary of words and never be able to speak a language, whereas even with a few words, if you control the syntax you will be able to say things and then learn a lot faster the words you need to enrich your discourse. This book is essential if we accept to reconsider our basic ideas about differently-abled people.
Dr Jacques COULARDEAU, University Paris Dauphine, University Paris 1 Pantheon Sorbonne & University Versailles Saint Quentin en Yvelines
A unique mind, a unique mathematician, 31 Jul 2007
Maths is the only true gift that i was born with and so was drawn to this book; it immediately made me feel slightly insecure because this man is an inspiration. Daniel, a Savant, that now leads a normal life, has achieved so much in his young life that it puts a lump in your throat.
He writes with perfect clarity about setting his pi record, meeting the real rain man 'Kim Peek', chatting with David Letterman live on American T.V and also an insight on how he can do unbelievable mathematical calculations in a matter of seconds.
A very humble man, he explains how he found it very hard to find employment and in his own words mentions that autistic individuals can bring 'reliability, honesty, a high level of accuracy, considerable attention to detail and a good knowledge of various facts and figures' to an organisation.
I found page 12 very useful because it gives you an idiot proof guide on how to remember all the prime numbers up to 100, which i passed on to my son, who also loves Maths. My son (10) was absolutely mesmerized with some of the things, that i explained to him, that Daniel could do.
There is a chapter that i thought i may feel uncomfortable reading (i will let you figure out which one) but Daniel writes it in such a tender way that you feel charmed that he shares his 'open book' approach to his life.
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Customer Reviews
Fall in love with every day life again, 26 Aug 2008
This is possibly the worst situation anyone could ever be in yet, Bauby tried his hardest to remain positive and showed heroic humour throughout the entire book. Whilst an unbelievably sad situation, the book is not depressing.
You can read the whole book quite quickly. Even those who don't read often can enjoy this reasonably short story with a huge positive impact.
For me, this book has reunited myself with the life we are supposed to be living. Appreciating whatever little we might have, whether it be the ability of complete or limited physical movement, or material possessions, we are unable to enjoy them if we don't appreciate them.
We must stop and smell the flowers more, or watch a butterfly in action when we have the opportunity. For me, doing these kinds of things, honours Bauby more as it is my way of showing appreciation of his efforts to survive in a crushed state.
For now, Jean-Dominique Bauby can rest in peace. And in the day of resurrection, he shall walk, talk and enjoy the real life again.
John 5:21, 28 & 29
Heartrending, 23 Aug 2008
Almost too poignant for words. A must read that will give you a kick up the pants and make you cherish all that's good in your life.
excellent, 21 Aug 2008
Short enough to read in one sitting, this book is well worth the read. It describes the vivid thoughts of a man struck down by a debilitating stroke at the peak of his career. Darkly comic and ultimately optimistic, the book is a compulsive page turner, and makes an excellent companion to the movie. Its all the more remarkable given that it was written through the medium of a blink of an eye.
Lasting impression, 30 Apr 2008
"Le Scaphandre et le Papillon" is a fantastic read full stop. I understand other's thoughts on this book and I respect their opinions, but for me, this book has had a lasting impression. I have also watched, about 2 years after having read the book, the French film version which was fairly accurate in relation to the book. I found that I gained enough insight into his former life to suffice - one must not expect memoirs of his entire life, but a focus upon his life after the stroke with a few references to his 'former' life. Both the book and the film are well written and produced and I have recommended and will continue to recommend it to anyone and everyone.
Five stars dosent do it justice..., 27 Mar 2008
I admit it, i'm emotional; I cried at this book, but for good reason;
The brain rarely fails, but when it does, god almighty, does it fail!
I couldn't bear reading this book for longer then a few moments at a time, because I knew what was happening to him.
Nevertheless, to place it in the context of the reader; imagine your arms, your legs, everything being tied down, tied down so tight you can't feel them, you can't feel your heart, nor your lungs. You have yourself, your brain. That's all.
Terrifying, and a grim reminder of what awaits us if we do not take care of our brain.
Cry Silent Tears, 16 Nov 2008
This book is amazing. It is incredibly sad and in some parts very hard to read, I found myself crying at certain chapters and holding my breath at others. Having said that I couldn't stop reading it and was anxiously awaiting the happy ending that Joe deserved. I only hope that books and stories like this bring an end to other children's misery. Although this story is incredibly heart-renching I would most certainly recommend it. I hope joe has now found the piece he deserves.
Cry Silent Tears, 12 Nov 2008
I cannot believe how much this book has touched me, I have cried my way through the majority of it and cannot stop thinking about what that beautiful little Boy had to go through to get where he is today....I suppose that being around the same age as Joe Peters makes it a little more hard to believe as I cannot understand how the things like that can ever happen.
This Boy was failed by his Family, failed by the system and failed by Adults in general....Adults, the people who are supposed to protect Children, the people who Children look up to for guidance and love!!!
I was expecting the book to be upsetting but wasn't prepared at the absolute horror I was reading about as I turned each page, I kept thinking, surely it will get better, but it didn't....the only reason I managed to get to the end was the hope that Joe would get away and be happy!!!
Joe, you truly are an inspiration, to have been through what you have, and come out the other side more or less intact, still with love in your heart....thank you for sharing your Story with us....I eagerly look forward to the next book and to reading about how you beat the odds to become the remarkable person you are today.
Horrific !, 05 Nov 2008
I have read this whole book in a day it is absolutely horrific in places, but unputdownable. you just want to reach out and grab that little boy and hug him and never let him go. What the hell are the social services and the people who are supposed to protect kids doing??? why didnt anybody question, or try to find out what was happening??? ie auntie, stepmum, teachers. I cannot understand how other people can inflict so much pain and suffering onto another human being i am so angry. well done to you joe for "surviving" and breaking the chain and for writing this book. I know you have changed names but maybe some of the people (social workers, teachers etc) will realise who this is about and at last understand what happened to you. There really is pure evil in the world but as you know there is also good people in it also. Wish you all the happiness for the future. xxxx
Listen to children, 01 Nov 2008
I have just read your book, I couldn't put it down. It is written in an easy to read way so that it just flows, making you want to keep reading. Also I was anxious to know the outcome, who would finally listen or take notice of Joe's behaviour. A child can't always tell you what is happening but by using behaviour they are trying to tell you something. Listen to what the child is trying to say.
I have given the book to my sister, who is a trainee Social Worker, with a message in the front - Listen to them!
Good Luck with book 2, Joe. You should be very proud of yourself!
Teresa
What a story!, 31 Oct 2008
Bought this book to read on the plane! What a book. This story was shocking to the core! An absolute must read. Joe had such a horrendous start in life so much removed from my own upbringing. Read this book in a day as I could not put it down. Joe had such a fighting spirit and it is amazing that through all the beatings and unspeakable things to him he has turned into the man he has. Shed more than a few tears reading this. Was shocked at the lack of support and insight that social services appeared to have. A truly remarkable book and I cannot recommended it highly enough!
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolesence, 28 Aug 2008
I first came across this book when I was at secondary school, and since leaving back in 2005, I have been searching for this particular title. I must say how highly impressed I was with this book and to read about the experiences of someone who has Aspergers Syndrome as it was a pleasure to read. This book is a real must for anyone who has Aspergers Syndrome or anytime of autism or for those who know nothing about this condition.
Thank You Luke, 11 May 2008
Im 15 years old and I was diagnosed with Aspergers Syndrome (AS) last year and reading this book has changed my life. Before I was told I had AS, I was always picked on for being different and sometimes I was so depressed and felt so alone, I wouldn't get out of bed for days. When I was diagnosed, I was told to read this book by a family friend and in doing so, my life changed. Luke Jackson, the author of the book writes about the everyday struggles that AS sufferers have to deal with, and after I finished the book, i thought 'Im not alone, there are other people who know what im going through'. Now I have turned my life around and I am looking foward to my future. Luke Jackson, i just want to say 'Thank You' for making me realise that im not a freak.
Such a good read, 29 Apr 2008
This is a fantastic book regardless of why you are reading it. I have worked in the past, and still do, with children who have AS and this was my main reason for reading it. It has such a different feel from other books as he is only 13 and this comes across so much in the book. I have read other books by teenagers and young adults with the same condition and they are equally just as good. I liked the fact that it all seemed to be Luke coming through rather than an adult's influence (apart from the obvious guidance and tidying up a book would need before it gets published).
The topics he covers are very relevant to those who have AS and those who come in contact with AS. Aspects such as bullying, fixations, sleeping, sports, friendships, dating, difficulties at school and language are dealt with brilliantly. However the most pertinent chapter for me was the one about when to tell a child they have AS.
Luke used his immediate sources - mother and siblings to help him with some of the content so that others with the condition can understand how people see them and this was such a good part of the book. I loved the idioms he uses and laughed out loud in many places. Not only will it give people an insight there is also practical information in there with websites, books and dietary information (also discussed in his other book). A fabulous read that is both inspirational and refreshing.
Read this book now|, 18 Sep 2007
I bought this book more out of curiousity rather than a need to know about AS/ Autism; I know/'work' with people on the autistic spectrum and this book was fantastic.
I'd recommend it to anyone whether autistic, family or friends of someone who is autistic or just someone who is interested.
Very well done to Luke Jackson , 09 Jan 2007
As an individual with Asperger's syndrome, I thought that it portrayed Asperger's syndrome perfectly, I could relate to almost all of it. The humour worked really well, because AS is normally portrayed really negatively. So, in summary, it made me laugh, cry, and realise that having AS isn't such a bad thing after all.
So, if Luke Jackson ever reads this, then very well done! I thoroughly enjoyed every page of it!!!
Jennifer Jackson
Honest, blunt, rewarding, 31 Oct 2008
a friend like henry,written by Nuala Gardner and published by Sourcebooks is a parents' book about autism...with all the fluffy bits removed. Honest, blunt, significant, rewarding. A well written, meaningful and very readable book.
a friend like henry is a book that tells the reader how frustrating, enlightening and magical living with autism can be, both for the person on the spectrum and those that live in the world parallel to ours.
I am happy to say that at no time in this book is it ever implied that Dale should be 'cured' of his autism, it is obvious throughout the book that the search is for coping mechanisms and behavioral modification.
One of the things I enjoyed most was that Nuala does not claim that pet therapy is the only solution to the above dilemma but she does openly and honestly share one way of using an autistic child's obsession to their family's best advantage.
One of the things I disliked the most about this book (besides the use of all lower case for the title and author name), was the way it rewired all my emotions and made me cry every few pages. I found that I had to pace myself through this book by reading it in between several others in order to give my emotions a break. I nearly couldn't continue on reading it at the end but I am not going to tell you why, as it will 'ruin' the ending for you. However, I am happy that I did carry on.
After reading this book I am still convinced that our N3S is still the child most likely to be savaged by a dog but I picked up a few tips encouraging on behavioral modification which we will apply through other mediums.
The section where Dale 'speaks' at the end of the book along with Nuala's afterword are nice twists and are the perfect ending to what I feel is a triumph of literary honesty. This is a very special book.
I speak as both an adult Aspie and a mother of an Aspie child when I say that this book will break your heart into several pieces and then show you interesting new ways to put it back together again.
It doesn't get better than this!, 06 Aug 2008
I couldn't put this book down. It made me laugh out loud and cry to the point of sobbing. I loved the tenacity, love and care of the Mother and I adored the dog.
A book that must give hope to parents of children with autism as the progress of her son is impressive. My best book of the year - even my husband read it.
I want a sequel!!!!!
A book All parents should read, 16 Apr 2008
As the parent of a Autistic Child the story was nothing new to me
but what was the comforting thing is the knowledge that someone else went through the same as me yes i could relate to most of the things in the book and the same feelings of dispair and the wish that my child could be "normal" this is a book that all parents should read as i think that the more understanding there is of the condition can only be for the good and help to dispel fears in relation to MMR and other factors
incredible, 03 Mar 2008
an amazing book about an amazing journey this family made. such an honest account of many difficult experiences. read it in one day. made me smile, made me laugh, made me cry. read it!!!
A special tale, 12 Nov 2007
This is the book to read if you think you have had a tough day! What Nuala and her husband went through with their two children is shocking and a real testament to them that they stayed together and kept their family strong. None of it would have been possible without Henry - a dog who you would think had been invented by Disney but really is a wondermutt. A moving and uplifting read
Real Life Autism, 16 Jun 2008
A very moving and interesting account of living with autism. I liked the way the vulnerability and the fragility of David's life was shown with such love and poignancy. Often (unintentionally) autistic children are protrayed as frightening destructive creatures because they don't understand the rules of life. This book showed us, as far as is possible, how the world looks from the point of view of the child.
Brilliant!, 30 Mar 2008
I read this book in one day (okay I was on a train to London and back!) It is one of the funniest, most moving and emotional books I have ever read. It is not inviting you to feel sorry for either the boy in the book or the parents but a portrayal of how life is for them as a family, including the older son. It was funny enough to make me laugh out loud, illiciting some strange looks from the other passengers in the compartment, and also made me swallow once or twice at particularly emotive descriptions. I cannot recommend it highly enough.
Wonderful insight into the Asperger's experience, 21 Oct 2008
As a mom of a teenage son with Aspergers I found this refreshing. So many books on the subject deal with those who have struggled in life or had limited success. Daniel is an example of a child who was encouraged to take on the good bits of 'normalcy' while his uniqueness was protected and the result is a well-rounded, successful and happy young man whose Aspergers is an enhancement rather than a limitation. He reminded me of my son in many ways and his insight into his own mind and how it differs, the experiences packed in at a young age, all very interesting. His writing is very true, I suppose for those who don't know anyone with Aspergers it might lack the rhythm and dance of usual writing but it is very much like having a conversation with an Aspie, the emotion is toned down, the information is turned up. Brilliant read and you root for Daniel at the end. I look forward to a sequel.
I loved this book, 06 Aug 2008
I loved this book, it was easy to read and you really got to learn how it felt to be a savant. He's a really likeable chap and I engaged with him throughout the book. Highly recommended.
Interesting, but but too much of this book is like reading a telephone directory.., 18 May 2008
The basic premise of this book is that we should admire Daniel Temmet's journey from shy, lonely autistic child to successful, independent adult. I refused to feel sorry for him simply because he was born into (what became) a large family living on a council estate - many people share the same start in life and survive without the special abilities that Daniel possesses. Equally my pity for him at being shunned by other kids has its limits - firstly he was much happier to be on hi | | |